Trial comparing treatments for Long QT Syndrome
Official title Comparing Direct vs Indirect Methods for Cascade Screening
ClinicalTrials.gov ID: NCT05348564
What this study is testing
- What it's testing
- This study is testing whether directly contacting relatives by the study team is better than asking the person with the gene to tell them. It looks at how well each method works and how it affects people’s feelings and health.
- Who it's for
- You may be able to join if you carry a specific heart or cholesterol gene and have close family members.
- What's involved
- You will give consent and then be randomly assigned to one of two groups. In one group, the study team will call or visit your family members. In the other group, you will be asked to tell your family members. All family members who want to participate will get counseling and a free saliva test at home.
- Time commitment
- The study lasts about two weeks after your meeting with the team, with follow‑up letters, calls, or visits if needed.
Which group you join is decided by chance.
A plain-language read of the study's public ClinicalTrials.gov listing. The study team confirms the details.
Who can take part
Ages 18 and older
You may be able to join if
- Proband
- KCNQ1 Thr224Met or APOB R3527Q carrier
- 18 years or older Proband
You likely can't join if
- None
The study team makes the final eligibility decision.
Where it is enrolling
- Lancaster, Pennsylvania, United States
Questions & answers
Do participants get paid in this trial?
This listing doesn't specify compensation. Many trials still reimburse travel or offer a stipend, so it's worth asking the study team when you connect.
Is it free to join, and do I need insurance?
Searching and applying through BridgeMD is free. In clinical trials the study-related treatment and visits are generally provided at no cost to you. You usually don't need insurance to take part, but confirm specifics with the study team.
How long does this study last?
The listing doesn't state an exact length. The study team walks you through the schedule and number of visits before you decide to enroll.
Who can join this trial?
This study is enrolling all sexes, 18 years and older. The study team makes the final eligibility decision.
Where is this trial taking place?
This study is enrolling now at Lancaster, Pennsylvania, United States. Enter your location above to see the nearest enrolling site and check your eligibility.
Explore other conditions
BridgeMD is an information and trial-matching tool that is independent of the study sponsor. Details come from ClinicalTrials.gov. The study team decides eligibility, and your own doctor gives medical advice.